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My Disability Doesn’t Define Me

What is amniotic band syndrome and how it affects my daily life as a 16-year-old sophomore in high school
Sophomore Kristiauna Brown (10) 
celebrates her Sweet Sixteen birthday.
Sophomore Kristiauna Brown (10) celebrates her Sweet Sixteen birthday.
Kristiauna Brown

Amniotic band syndrome is a rare disability that only appears in one in every 10,000 to 15,000 pregnancies in the world.

Most babies do not survive this phenomenon because of the severity of it. ABS (Amniotic Band Syndrome) occurs when the lining of the amniotic sac is damaged during pregnancy, creating fibrous, string-like strands of tissue that entangle the fetus, parts of the fetus and or umbilical cord, the survival rate of ABS is 74%.

I was lucky enough to survive this. Unfortunately I lost most of my fingers on my left hand causing my hand to become deformed and all of my toes on my right foot and one toe on my left foot. To most people this sounds super unlivable but I am living proof that you can conquer it.

I basically had to learn how to do everything that normal people do but just in a different way.

This disability made me super insecure and scared of what people thought of me, especially since most of my life people either bullied me or pitied me and I hated. As I got older I decided to not care about what other people think of me and to let my personality shine and I learned how to stand up for myself and to not let people treat me badly.

There are many ways that my disability affects my life but it’s not too major. I just can’t really tie my shoes normally and I drive with only my right hand, just waiting to get myself a car. I can dress myself like normal and I eat like a normal person.

Typing was difficult at first but with lots of practice I can type pretty fast now. I can do my own hair and makeup easily. There are some things that are still pretty difficult for me to do like putting on a necklace, this is still extremely hard for me and earrings are also a challenge but I’ve found a way to do it that works for me.

I only have two more years of high school I plan on graduating and studying film and editing in college.

After years of being in and out of hospital since I was a baby, I can finally say that I am fully fine and comfortable with who I am. I am so proud of myself for never giving up and always trying my hardest and not letting anything stop me.

I hope my story inspires you to never give up even when life throws huge obstacles at you. Always be your unique self like my mom always says. “Haters are gonna hate no matter what you do,” so take my advice and be yourself.  

About the Contributor
Kristiauna Brown
Kristiauna Brown, Reporter
Kristiauna Brown is a sophomore and she enjoys acting, reading, listening to music and writing. She also loves having fun with her three older sisters and her family . In her free time she likes to play video games. She recently joined the school district after being online for three years. She wants to become an actress after high school. She was born with a disability called amniotic band syndrome but she didn’t let that stop her from achieving her dreams and working hard. She was born in Round Rock, Texas until her parents decided to move to New Orleans, Louisiana where she was raised in her early years of life until her parents made their last move to O’Fallon, Missouri. Kristiauna plans to study film at Washington University.